I walked into mom's room this morning, she was awake and sitting in a wheelchair. She looked rested and clean. She had again refused her breakfast, so I asked if they would bring something that I could coax her into eating. They brought a bowl of oatmeal and a small glass of juice. Mom refused to even taste it. At 9:00 a.m. Lory walked in with mom's meds, crushed and mixed into a paste using a milkshake of sorts. Mom would barely open her mouth, she'd arch her back and spit whatever was placed in there. Ugh! she was frustrating! Lory had a milkshake waiting for her and when mom wasn't watching he mixed the meds into the shake hoping mom would take them that way. She took most of it. The problem with not taking her meds at this time was that she would not be offered any others until 3:00 p.m. Mixed in these were her pain meds. We had a short visit, but it was a good visit.
Yesterday I talked to Jack, Social Worker, at the rehab center and he was getting back to me concerning the power of attorney, rights we have in asking questions concerning mom, her care and her needs. Well.....today we were told it was up to the "responsible party" to allow us to know any of this. Federal law prevents us from getting any answers unless our little brother says we are on the "approved list". Wow!!! So instead of being cordial, communicative, informative concerning mom we are to ask our questions on a yellow tablet left on her nightstand and when "they" get to it they'll respond. How 'bout that? We can't win this battle, but we won't give him the opportunity to hold out anything either. The nurses have, in their own way, filled us in on what's going on. Mary and I have been appreciative of this and have shown it. They know what kind of person they're dealing with in him.
I was able to come home before 11:00 a.m. this morning....after sitting at Addax waiting for the workmen to finish for the day. This is my second week staying over there while the guest bath is being remodeled. It has been a long two weeks! I've gotten some scrapbooking done, made CM calls, and somehow my business part of this has been great!
Because I was home most of today, laundry was finished, the floors were swept and mopped and dinner was on time! All in all it was a good day.......God will somehow let us know what we need to know about mom. Patience, persistence, prayers, and gratitude is all we need right now.
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